[ Post a Response | SCOLIOSIS-FUSION MESSAGE BOARD ]
Posted by Kelly on 12/30/2006, 1:54 pm I'm looking for info on nonsurgical treatment options for kids with scoliosis and severe mental retardation and/or behavior disorders. I volunteer with a support group for kids with WAGR syndrome - a rare genetic disorder. These kids often have significant cognitive impairment, and many also have serious behavior disorders (such as autism) Several of our kids have been diagnosed with scoliosis -- all have been told that surgery would ordinarily be recommended for them, *however* because of their retardation and/or behavior disorders, the surgery will not be done. No other treatment has been offered to these kids. Does this mean that they are doomed to progression/increased disability and increasing risk of complications? Surely there have been others who've dealt with this situation....but I can't find anything on the internet. Perhaps I'm not looking in the right places? I'd appreciate any info or direction anyone could suggest. Thank you very much,
70.242.187.182
Hello,
Kelly Trout, RN, BSN
International WAGR Syndrome Association
http://www.wagr.org
Message Thread:
« Back to thread