Posted by Sherry on 6/25/2008, 12:03 pm, in reply to "Prayers for Jiri"
75.16.242.234
Kristy,
I just read this on Jiri's carepage. I was so hoping that Jiri's quality of life would get better with the diversion. The AGS presents itself so differently in each child. Jiri's xanthomas on his hands are the worst I've seen. Evan had about 1/2 that many from age 1 1/2 to about age 3. Then they just seemed to melt away. Doctors can't explain why some do this and others don't. So......I am saying all that to make this point. I believe that the one true constant that we can rely upon is our Lord. He never said that we would be free of troubles, he just promises to take us through them. There is always hope because of Him. Keep leaning on Him like I've seen you do in all your posts. May the Lord give you peace during this troubling time. You are such an awesome mom and advocate for Jiri. Keep it up.
much love from Southern Indiana to our friends in Michigan,
The Lehrs
--Previous Message--
: Hey everyone. Today Jiri's Doctors called and
: asked us to come to Ann Arbor for his
: appointment early. We were scheduled July
: 22nd, but it seems as though we should not
: wait. We are going to talk to the
: Transplant Surgeon and I know very well they
: are going to want to list him. I am really
: scared, more scared than I have ever been.
: I am not sure just what I feel, or if I can
: comprehend the feeling I have. I know I am
: strong and Jiri, well he is even stronger.
: I always feared that he would need to be
: listed and knew it was a possibilty....as it
: becomes reality I just ask you all to pray
: for him, pray for us, that we can be strong.
: I pray for all our Alagille Children each
: night and during the day, and well, all the
: time...so I know God has a place in his
: heart for Jiri, I really do! I'll keeo
: strong, keep you all posted, and much love
: from Michigan.
:
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