Posted by George
on 5/30/2009, 7:41 pm
91.106.195.89
I was born with kyphoscoliosis and had anterior and posterior fusion at the ages of 2 and 3. I'm 22 and very unhappy with the way I look. I'm 5'4" as a man, with a 70-90 degree kyphosis and 70 degree scoliosis.
I've tried to get surgeons to remove the fusion, but nobody is interested as my life is not in danger. Yet, due to the cosmetic deformity of my spine, I battle with suicide thoughts almost every day. I can't go swimming or go to the beach, and sometimes I can't walk out the house or walk down the street as I feel terrible. I also have trouble with intimate relationships with anyone, particularly as a homosexual...you just can't hide kyphosis.
I'm grateful that I have a solid fusion that will serve me well, but at the same time the mess that i've been left with make me wish that I had died as a child.
I don't wish this terrible disease on anybody and I hope you can somehow get through your life. It must be a lot worse as a woman as females are even more concerned with how they look. Best of luck for the future...I know what you're going through.
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