Posted by Darcy on 13/6/2011, 8:54 pm, in reply to "NO not now when i get the remciade"
I know just how you feel! I finally had to quit taking the Remicade, as I got an infection, ended up in the hospital for 8 weeks and almost died a few times! It was terrifying! I am now on Humira injections every week. I do them myself, and they also make me sick as a dog! The first day, I throw up ALL day....the second day, and am so tired I can barely function. A couple weeks ago, I had a reaction and ended up in the ER...they thought I had a blood clot in my lung. Scary stuff....I dont know what's worse, the meds they give us for the disease, or the disease itself! LOL I have taken myself off the chemo shots for now.....I have a busy summer, and cannot afford to be so sick! Let's hope my body holds out, and if anything does happen, antibiotics can take care of it! I'll talk to my doctor in August. They want to run some tests, make sure my fistula tract is all closed up, and may even do a reveral on my ileostomy, which I have been dreaming about! But, it will have to wait until after football season! LOL |
( am I a die hard football mom, or what?) LOL
Take care my friend. xxxxx