Re: White Cell Scan update
Posted by Dave on 18/2/2011, 1:31 pm, in reply to "Dave ,"
Hi Donna |
Only just seen this post, sorry
Maybe meet up again in the future!!
Yes i had a nice early start to visit Lincoln Hospital on Wednesday.
They took plenty of blood out of me at 8:30am then said i could return for 11am where they would re inject with added radiation ready for the tests.
We enjoyed a nice cooked breakfast in the canteen (pretty reasonable) then returned for 11am.
Got called in to a side room by one of the specialists.
They could not get my blood to seperate & over the 2 hours only got 4mg instead of the 40mg or so they needed
Said it may be the drugs i'm on or i may just be "special" (Chris my wife agreed).
THey said they could repeat this everyday for a week & it may still not seperate, so would report back to my Crohn's Consultant.
The white cell scan would have shown where all inflammation was (Colonoscopy had shown inflammation in the Ileum) & said this test is now the Gold Standard for checking Inflammation.
So they apologised for my wasted time & wasted journey, which i said was no problem & it couldn't be helped.
Anyway yesterday i was out early again for my Crohn's Consultants appointment at Louth.
He confirmed the inflammation from the Colonoscopy he did recently & said i've got active Crohn's (which i know & have for ages).
Asked how i was getting on with the recently prescribed Budesonide & has now also given me Calcium tablets to take as Bone scan i had late last year showed a reduction.
Got to see him again in April (day after i see my Haemo).
Anyone else suffer any side effects with taking Budesonide?
My face is really flushed, hot & tenderish, everyone keeps asking where i've been sunning myself