Posted by jayne on 2/10/2007, 2:39 pm

hi all hope you are keeping well i am not to bad been nearly 12 months since i had my illestomy. i hate it but still i have put weight back on but they think it is permanent, i only have 23 cm of colon and it was diseased, they said if they reverse it it usually flares up again. i have been getting dla just the mobility part upper rate. it runs out in march next year so now i have to re apply. does anyone get it who have an illeostomy. will it affect my dla being as i have a illeostomy now thanks jayne

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Posted by Pat on 2/10/2007, 7:48 pm, in reply to "advice on dla"

I live in the USA so I can't say what dla there might do in regards to your ileostomy. Don't have any idea how they feel about them in relation to Crohns disease, etc. Isn't there somewhere where you can check on such things? I'm sure that someone here will reply to your post....just give it a little time. Seems things are going kinda slow around here lately. I'm glad to hear that you're gaining weight...that means that your body is getting the nutrients, etc., that it needs. Getting used to the ileostomy is an individual thing I would think. Anyway, please do keep us posted on how things are going for you. Sending good health and happiness your way.......... Lotsa luv and hugs, Pat XXXX

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Posted by Gemz on 3/10/2007, 8:03 am, in reply to "advice on dla"

Hiyi Jayne Sorry to hear about you not being able to have a reversal. I too am unable to have one, more due to the complications i had from the first surgery. But to be honest, i'm happy with my stoma and i don't think i would have it any other way due the lifestyle i have now. IF i was to have a reversal..i was advised that within weeks i would flare again...this is something i would not risk... I've applied for DLA a couple of times and was knocked back. I just gave up...but i'm back in full time employment, since Jan this year (7 months after my surgery).. Huggs Gemz xxxx

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Posted by Philip on 3/10/2007, 1:18 pm, in reply to "advice on dla"

you need to seek help from a good welfare rights organisation such as CAB. They are up to date with benefit rules and measures to take to fill in forms. If your health has improves since op it may well effect the benefit. There again, the op may have resolved one problem but caused another. You need to keep a daily diary to build up the picture. How do you feel? Does lack of bowel leave you exhausted (crohn's fatigue)? Any probs with the illeostomy and its care, any accidents in the middle of town etc? How do you manage all that you need to do to get through your day - you must examine every minute detail from waking (do your meds effect you state of conscioussness, leave you disorientated?) do you know where you are or do you need time to come round. How do you get out of bed? Do you throw back the covers and leap out or do you need to use equipment of any sort including furniture or assistance from partner? What's your mobility like? Any dizziness from meds or lack of meds or remembering to take your meds etc? Whole routine must be put under microscope and thought abaout in detail. Any pain or discomfort experienced? It can be more extensive and quite complex so ask for help from CAB or other good welfare rights agency your area.

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