CrohnsChat

update from seeing doc

Posted by chip on 1/10/2007, 10:33 am

been to see the doc as have been a very poorly girl of late. Here's the update: good and bad news: ok, best news is: bleeding gone back to spotting only, only nauseus now not vomitting. pain lower left has gone just cramps occasionally, and have appetite back. Bloods taken last time showed crazy inflammation but think the steroids have helped reduce that. The doc says i can start to reduce steroisd by 1 mg per week back down to 7.5 mg - he's given me a calcium bone protector tablet which you take once a week and have to sit up straight for half an hour aftrer taking it, and upped ensure to 3 a day. I'm definitely on the mend but need to build up, bad news is i'm really really breathless on doing short walks, so much so i have to keep stopping to catch my breath so on listening to my chest he says there is a left sided heart murmer - new for me - that needs investigating and i have to go for some ECG and heart tests. My heart was ok pre op in February so this is a rather new and alarming thing, but hopefully we've caught it early. I assumed it was an electrolite imbalance but apparently not. So glad i gave up smoking 9 months ago, just wish i'd done it sooner.
It's not the best news but at least i'm on the mend. I'm trying not to worry about any heart problems though as that's the last thing i need) I very much doubt if i will be making it to notts this year (i'd need a zimmer frame if i turned up ! lol) unless i feel a billion percent better, and i'm gonna have to cancel Geneva but there's always next year. Strangley enough all i feel is GLAD i don't feel like i did 2 weeks ago, the crohns seems to be settling down and thats good enough for me. Got the funeral tomorrow then hopefully i can just rest rest rest and rest some more, though i'm under advice to pig out on lots of protein etc so pig out i will!!!
hugs your guys.
chip xx

Re: update from seeing doc

Posted by Pat on 2/10/2007, 12:29 am, in reply to "update from seeing doc"

Hon, I'm sorry that you've had such a bad time. At least some of this news from the doc is good....sounds like you're making a bit of progress at least. Try your best not to worry about the shortness of breath/heart murmer until you've had tests done. But, please be sure to let us know when those tests are scheduled so we can all be thinking of you (always do anyway)!
I do hope that you'll be able to let down and rest after the funeral. Sometimes that's exactly what our bodies' need more than anything!
Keeping you in my thoughts and prayers and sending blue skies and sunshine your way...........
Lotsa luv and hugs,
Pat XXXX

Re: update from seeing doc

Posted by Pixi on 2/10/2007, 7:25 am, in reply to "update from seeing doc"

Hya hun, good god woman you have been poorly, I am glad you are on the mend, but am sorry you are still feeling poorly.
as for the heart murmur, I dont know very much about them other than there are lots of different typs, Sam has one & so do my mum & bro, its called wolf parkinson white (the one they have) & is generally just musical, but when he was little, it used to make him breathless & when my mum has been really ill, she is the same, it could always have been there & now you have been so ill it has become worse & so picked up, they didn't pick my mums up till she was 50, just a thought, obviously it could be different, but it is best to get everything doen to check.
I hope things can only get better for you now, sending you lots of love
xxxxxxx

Re: update from seeing doc

Posted by Yvonne on 2/10/2007, 6:18 pm, in reply to "update from seeing doc"

Hey hun,
Did they give you any reason for this flare? Is it anything to do with that new drug you are taking to help with your output? Glad it is easing off but I think you deserve more answers hun. Seems very unfair to go through all that surgery to still be so poorly

xxxx

Re: update from seeing doc

Posted by ny on 2/10/2007, 6:20 pm, in reply to "update from seeing doc"

gosh Chip,
i'm sorry things aren't going so good for you! hang in there! the steriods should help you. i'm not sure if a multi-vitamin will help you. but i am taking one and its seemed to help keep my energy up at least.
take care
much aloha

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