CrohnsChat: Update on Jo

Update on Jo

Posted by Neil on 29/9/2009, 3:27 pm

Hi all and I hope that you are all doing as well as you can and that you are managing as best you can.

For those who remember Jo, diagnosed at 15, full illeostomy at 15.6, major surgery last year to remove rectum.
Well her Crohns is not responding well again and the scar here they removed the rectum is opening up, The plastic surgeon says there is nothing he can do as its the Crohns that is causing this.

She has been referred to Nottingham where they are doing Stem Cell research and interviewed to see if she is suitable for this trial and if she agrees. (Being 22 she is madly in love with her hair and is scared about it all falling out)

The trial is having good results with patients going into remission and managing to remain there. There are risks, and they are scary both to her and me as her father.

I am away for three weeks but will hopefully know theirs and her decission when I get home.
I'll obviously keep you all informed.

Neil

Responses:

ahh bless - babs 29/9/2009, 7:10 pm
Re: Update on Jo - Keith N (kan) 30/9/2009, 2:00 am
Re: Update on Jo - Abby 1/10/2009, 9:39 pm
Re: Update on Jo - Bev 2/10/2009, 4:28 pm

« Back to thread

Reply

Name:
Email: Optional

Subject: ~~All Bowel/Other Problems Welcome,

Write Your Message: No All Caps Please

Post a gif from an URL

Optional Link Title
Optional Link URL:

Email me the replies

By posting, you confirm that you have read and agreed to be bound by the board's usage terms.

Please Remember , this is a place of support and friendship. Please treat everyone with the respect they deserve. There are going to be differing of opinions between members and venting on bad days ........ If you disagree please , don't argue, or attack personally. Thank You

CHAT RULES
(Warning Notice Re Chat)
Never accept whispers from people you do not know.
Do not divulge your name, address or telephone number or ANY personal information
Never let a stranger know your age group
Be aware of the person you are in conversation with .
If you are alone with a stranger come out of the chat room and ask one of us to join you.
Chat Rooms can be fun, but also visited by undesirables even on health sites.
When on the Internet, Be Aware of your own Security at All Times.
If you are asked ANY personal questions or whispered by anyone you do not feel comfortable with, Please tell one of us ASAP.

Any Worries .. Please Tell
It Will Be