
Posted by Dave on 1/9/2009, 2:46 pm
Hi all
Just returned from my first visit to the consultant. Had bloods done again for him to look at.
Its quite good to go to the bloodtest area jump the queue (dozens waiting routine tests) then go for a coffee & see the Consultant an hour later with the results
He took details & we discussed options (i had said what i knew & had read about)...
He believes i've probably had CLL undiagnosed for a couple years.
As with most its watch and wait initially with a CT scan booked to check my lymph nodes in the next 2-3 weeks.
I have to return in 2 months (late October) for another bloodtest & chat with him & obviously discuss CT scan results.
He doesn't think at present anything will be done for a couple years but did ask about brothers/sisters for Bone Marrow matching.
I discussed the extreme tiredness & night sweats & how hot i often feel & said maybe i should listen to my body a bit more & refrain from work when i'm too exhausted. I've always put this down to the Crohn's disease i have (certain days i go into work & struggle to stay awake at my keyboard).
All i've to do now is tell my family still
then i guess i can rest easy & learn to live with it like i've done with my Crohn's for 25 odd years.
Dave
CLL Support
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