CrohnsChat: hey all!

hey all!

Posted by ny on 10/5/2008, 4:10 am

How are you all!? sorry as usual, i haven't been around much....try to check in.

Well, i got my remicade about two weeks ago now. they doubled my dosage of remicade. Which worried me. but i guess i did ok. i'm just worried that it will soon not work for me. so far its ok. i have my good and bad days. The only thing is my lupus is acting up. i'm having the bad aching joints. i'm just dealing with things as they come.

Yesterday i did something spontaneous. well, since i get remicade at the oncology department at the hospital, i see all the young and old women and men that come there to get their chemotherapy. one young woman not much older than i, was laughing and joking about what hairstyle she wanted to get for her wig. she had a great attitude about having cancer. so i've always thought about donating my hair for women with cancer. well, my hair was very long. and i passed a hair salon, went in and said i wanted to cut it and donate my hair. it was a great feeling. my hair still has some length, but i felt good about doing something for someone else, even if it was a small gesture. its great too, less shampoo, less time to dry! hehehehhehe

i'm still thinking of doing a fundaiser for CCFA.
the places that i have scouted out to hold it at, have all closed up. and being that the economy here in the USA is not that great, i'm not sure if i can get people to donate. have any of you planned a fundraiser?? any suggestions??

I hope all of you are doing ok.
been thinking of you all!

much much aloha!!

Responses:

Re: hey all! - marmite 19/5/2008, 4:08 am

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