CrohnsChat: health dilemna driving me potty

health dilemna driving me potty

Posted by chip on 6/8/2007, 1:06 pm
Message modified by board administrator 6/8/2007, 2:27 pm

I've high output stoma fluid i.e. can be up to 4 litres of watery ouput instead of 1/2 litre of thick output. Its caused by my body producing excessing digestive juices i.e. should be about 1 litre and its about 3 litres. A simple proton pump inhibitor should sort the problem and infact when i take it it cuts output by half! Fab wonderful great EXCEPT i'm alergic to an ingredient in the PPI's. Not just a bit alergic - hugely alergic in that i get raised ALT levels off the scale which can potenitally cause organ failure - so now i'm playing cat and mouse. I've tried 3 types of PPI and ALL have made me really ill have 3 more to try but they make me so poorly i hate taking them. High output isn't just annoying it causes severe dehydration resulting in hospitalization. I've just had another letter to say i'm now low in magnesium AGAIN due to high output and need another infusion. Have to say this seems like a no win situation. If all the ppi's fail i;ll be faced with constant infusions and hospitalisation and i'm not best pleased about it. grrrrr
just sharing my frustration - needing a hug right now.
chip xx

Responses:

Re: health dilemna driving me potty - Mill 6/8/2007, 1:51 pm
What!!!! - Robbie 6/8/2007, 5:19 pm
- Oh hun - Pixi 6/8/2007, 6:51 pm
  - Ps - pixi 6/8/2007, 6:52 pm
    - pps - pixi 6/8/2007, 6:59 pm
      - pixi - chip 6/8/2007, 7:21 pm
- Re: What!!!! - chanes 6/8/2007, 8:02 pm
Re: health dilemna driving me potty - Pat 6/8/2007, 5:20 pm
Re: health dilemna driving me potty - BERNIE 6/8/2007, 6:58 pm
Re: health dilemna driving me potty - chanes 6/8/2007, 7:55 pm
Re: health dilemna driving me potty - ny 6/8/2007, 11:47 pm

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